https://www.surveymonkey.com/r/DVNV2BV
Your medical care |
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* 1. What is your diagnosis w 0
Essential thrombocythemia
Polycythemia vera
Myelofibrosis
Other (please specify)
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* 2. When were you first diagnosed with your original MPN? w 0
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* 3. Where did you get your first MPN diagnosis? w 0
Family physician
Hematologist
Other (please specify)
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* 4. Is your hematologist an MPN specialist w 0
Yes
No
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* 5. How frequently do you have a Complete Blood Count test? w 0
Every three months or less
Every three to six months
Annually
Other (please specify)
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* 6. Are your blood test results reviewed by your hematologist? w 0
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* 7. Are you a member of an MPN patient support group? w 0
Email or other on-line support
Local organization
Other (please specify)
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* 8. Do you have any of the following mutations? w 0
JAK2
CALR
MPL
Other (please specify)
Bottom of Form
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* 8. Do you have any of the following mutations? w 0
JAK2
CALR
MPL
Other (please specify)
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* 9. Have you ever been referred for a transplant consultation w 0
Yes
- 10. Have you ever sought a second opinion from an MPN specialist